2 years

It’s been exactly two years since having this blog and I am no where near where I envisioned I would be in writing. My goal was to blog post so that I had a method of communication for myself. Free of my thoughts.

Starting over

I have had this blog for over a year now and I tell myself over over that I want to have a space for myself in which I can grow. I genuinely want this to be for me. I want to grow in my career, athletic career, friendships and relationships. Overall I want to keep a strong mindset and body.

I’m changing the world.

I have been asked to participate in a clinical case study for St. Jude’s Children’s Research Hospital. When I was diagnosed in 2004, my oncologist, Dr. Robert Williams contacted Dr. Raul Ribeiro. I was to be part of the IPACTR clinical trial since, however I was too young to even gather relevant data that would further the case in the correct direction. Several doctors such as Endocrinologists, Pathologists, Genetics and more have been following my case for the past 13 years. I am one of two 18 year old who are part of the trail. My tumor which was 13.5 cm, is still being tested for tissue. My case in specific is of importance to the trail since not only did I have the cancer but it spread into the right atrium of the heart causing further destruction to the body. The importance of my participation in the trail is to find out how genetic conditions such as Li-Fraumeni and Beckwith-Wiedemann syndrome make a person more susceptible to develop ACT. I am being tested for these two specific syndromes along with 5 genes that perhaps have a mutation. Since it has been quite the stretch between 2004 and 2018. It is also important to find out how my particular genetic makeup affects my survival for years to come. This trail is for the millions of children that have yet to be diagnosed. My case is a shot for the future. I can only feel happiness and relentless love for my diagnosis. I promised my own self as a younger individual that I would one day be able to change the world into a healthier place for all. I started to do so as a young teenager and a few months back when I started eating just as a caveman/hunter would do so. I have an inevitable purpose to keep making this shifted world into a better, specifically healthier place for generations to come. I am extremely proud to have had cancer. Whether the outcome for the multiple genes/syndromes come back positive or negative; I will be happy either way. I’m living in the now and always in positive regards. Blessings always come when I set my mind only on the positive. Forever changed for the better.

Change the World Melanie

I have been given an opportunity of a life time. I was offered to participate in the International Pediatric Adrenocortical Tumors Registry. It is a clinical research case study involving rare endocrine tumors at St. Jude’s Hospital. Doctors located a paraffin block in my case. They have decided I am 1 of 5 individuals who best fit the rarest type of Adrenal Cortical Carcinoma cases. I will participate in extensive clinical and laboratory evaluations as well as genetic testing for the P53 gene. If tested positive, I code for the cancer gene and have a high change of getting cancer again. However, it is my opportunity to change the world. This will allow me to further the knowledge of doctors, families, and patients regarding the cancer I had. I have the chance to change someones life. I willingly have decided to follow through with the research and aspire to make a difference for some else’s life.